One year of horror - will they ever acknowledge it?
Calling on the Coalition Government to issue a formal apology to the disabled community.
On the first anniversary of brutal cuts to support for disabled people - advocacy groups, family associations, and disability organisations are supporting disabled adults, disabled children, and their families and carers in calling on the Coalition Government to issue a formal apology to the disabled community.
March 18, 2025, marks one year since the government's drastic disruption, removal, and restriction of vital disability supports. This date also marks a year since former Minister Penny Simmonds falsely claimed in Parliament that parents and carers of disabled children were misusing disability support funding—an accusation that has caused immense harm to the community.
The letter calls for an official apology for the unfounded accusations, which have caused unnecessary shame, distress, and trauma to parents and carers of disabled children. The letter further condemns the Coalition Government's actions, which have included a reduction in available support and resources for the disabled community, leading to lasting harm and uncertainty for families.
The letter was made by, and with, the disabled community including hundreds of families who have said they’ve been deeply traumatised by the actions of the government over the past year.
The stories we have been hearing from parents and carers every week for the past year have been harrowing. They feel humiliated by the accusations made by the government and alarmed that despite those accusations being proved to be false - there has been no redress.
They’re hurting and have no support. Parents have told us that they have lost hope and they are afraid for the futures of their children. Aging parents who cannot get their child into residential care fear that their disabled child will be left alone, with no support.
Disabled adults have told us they feel hopeless as they try to grapple with cuts in support and the micro-management of their individualised funding. They don’t have faith in consultation because they feel this coalition government sees them only as a burden”.
We have used more than 600 stories sent to Awhi Ngā Mātua from disabled adults and parents and carers of disabled children as the basis of this action. The feedback has been clear - we are in crisis and we need the government to recognise that now.
Parent to a disabled child, advocate, and kaitiaki at Awhi Ngā Mātua Katy Thomas says dignity to the community must be restored, “Distress is at an all time high in the disability community. As is our solidarity,” she says.
“Psychiatrists report extreme concerns about the impacts of funding cuts on disabled patients and their parent carers, as is born out in increasing violent behavioural presentations to ED and rising prescriptions for anti-psychotics and sedatives.”
“There is no magic pill for disability. Disability is life-long and life became untenable for many in the past year. Before we can move forward from March 18, we urgently need repair. An apology costs nothing but restores dignity to damaged relationships. Restoration and reform are only possible with reconciliation first.”
In personal news, I am exhausted. I have found the lead up to putting out this campaign really just brutal. It has been just awful. I feel like I just don’t have much left at the moment.
I’ll be back Friday with Friday Night Chats for paid subscribers. But I need to just take a moment to try to be OK. Please, please share the open letter. So much mahi went into this by parents and family who are already just broken.
As part of this mahi I have read hundreds and hundreds of devastating stories sent to use from families. It is harrowing. Truly.
Please take a moment today to consider all that has been lost since the government cut supports for disabled children and adults. Please take a moment to hope that our communities can live through this.
And if you read one thing today please make it this by my astounding friend Etta who I am so beyond grateful for: March 18th: One year on from the disability cuts.
Enormous thanks to Ruby, Vera, and Anastasia at ActionStation for their support when I was feeling like there was no way we could get this over the line. And thank you to Katy, Noods, and Etta for letting me cry down the phone.
Kia kaha Emily. Your mahi is amazing but don’t let it damage you – take some time. I reckon we could chat amongst ourselves for the occasional Friday night!! Xx
Signed. And remember to put your oxygen mask on first. It’s a hard thing to do but I had a revelation about this when I realised I wouldn’t expect a car to go without petrol. So we should look after ourselves at least as well as we look after a car