Supporting neurodivergent children this Christmas...

And their parents too....

Most people with neurodivergent children will know Christmas can be difficult because it is a major change to routine and there are enormous expectations.

There are many aunties and uncles, siblings, grandparents, and family friends who want to support the kids they love who have autism, ADHD, or any other neurotypes. They want to make their homes more welcoming and their holidays more accessible. I love this, and as the neurodivergent parent to a neurodivergent child I’m always grateful for it.

The best thing to do if you have a loved one who is neurodivergent is to ask them or their parents what works best for them.

Here are some ideas that might also help - First, it’s good to just acknowledge that things might not go well right from the get-go. December is a hard time for everyone – not just neurodivergent kids. School is ending, routines are out the window, everyone is tired and there’s enormous expectation on people to perform Christmas correctly. There’s a lot of (maybe too much) socialising and a lot of ‘shoulds’ and ‘don’ts’ and confusing traditions.

Last year, I commissioned my friend and researcher Tam Clemerson to create a Christmas survival guide for the Awhi Ngā Mātua community. Tam is neurodivergent too and they have a neurodivergent child.

Photo by Mael BALLAND

Here are their tips and mine – combined into one handy guide.

Timetables: Routine is useful for everyone’s peace of mind, but it can be a vital tool in managing neurodivergence. On Big Days like Christmas Day, routine often just isn’t an option. If that’s the case, the next best thing is ensuring, as much as possible, that nothing is unexpected. In the absence of routine, create certainty.

Tip: Consider putting a big timetable poster on the wall as a visual aid. Tick off things as you go through them to create “an anchor in time”.

Pick and Choose: If you receive heaps of invitations to visit family and friends, it can be overwhelming. Give yourself permission to pick just one or two events per Big Day. Events are often prioritised based on the relationship with the host but it’s also important to consider how happy your whānau will be at each event.

Tip: Don’t take it personally if there’s a cancellation on the big day. Or if your family can only visit for a short time. They’re trying to manage their capacity and it’s not a sign of how much they want to spend this time with you. It’s about what they can cope with, or their loved one can cope with.

Suggest Alternatives: Every tradition started at some point and no tradition has stayed the same since its genesis. Keep the traditions that work for you and avoid the others.

Tip: Why not schedule a quiet visit? Or you could have presents and pastries in the morning instead of a day of Christmas festivities?

Time Limits: Certainty is key, for happy kids and happy adults.

Tip: Remember how in Cinderella, the carriage turns back into a pumpkin at midnight? Set a Pumpkin Time and let the hosts know ahead of time when you’ll be leaving.

Set expectations around physical contact: Let other adults know what’s acceptable and unacceptable touching for your child. You may need to be quite strict with other adults about this one, and it can be useful to figure out bearable alternatives to the customary squeezy cuddle and wet kiss. You’re looking for ways to ensure your kid is comfortable and supported, and Granny is still able to express her love.

Tip: Cheek Kisses (lightly pressing our cheeks together) and Hair Kisses (kisses to the top of the head) involve loving intimacy but minimal mouth contact. Sometimes hugs aren’t wanted but sitting next to each other holding hands is acceptable.

Eating and Christmas: Many ND kids and adults have ‘safe foods’. It can be distressing to not have food that is familiar. and your kid will know they’re not going to be confronted by the wrong brand of custard or roasted potatoes instead of boiled.

Tip: Pack a lunchbox for each child. The food will be familiar and ready for your kid when they need it, regardless of what the rest of the family are doing.

Plan for Quiet: Christmas is busy and, to be frank, it’s a sensory nightmare. Flashing lights and repetitive songs are everywhere. Everyone needs time to rest and recharge, so put it into your timetable.

Tip: Block out alone time after lunch or even entire days with no plans. Put the tree lights onto slow fade instead of a fast blink and keep any background music down low. If you have the room, create a Quiet Space for reading books and quiet conversation and a Loud Space for playing with new toys and listening to music.

For my family – we no longer travel for Christmas as it’s too stressful for our child. But we welcome family and friends to visit. We do presents in the morning and have Same Foods and keep our normal routine for our child. We have quiet time until the afternoon and we come back together to have afternoon tea.

When we visit family, we haven’t seen before, we do it on a day that’s less busy. And we ask for photos or video ahead of time so our child can see ahead of time what the environment they’re going into is like.

We tell friends and family what our son’s Special Interests are – and then they can ask him about them. He loves to talk about his Special Interests, so it helps him to get comfortable.

We bring our own food, a comfort blanket, and books for quiet time. We check in with each other often - How is everyone feeling? Is anyone starting to feel tired? Do we need some quiet?

What do you do with your family?

I often think of the wisdom of my friend Kahukura, Ngāi Tahu and Te Ātiawa, a mum of two, who is autistic and ADHD. She runs a Facebook account More Than One Neurotype to help to educate the public on neurodiversity.

A while back I talked to her about how hard the pandemic is on austistic kids. And she said something that’s stuck with me ever since:

“…if we say everyone is different and that’s OK that doesn’t just help autistics it helps everyone.”

Any changes you make this holiday period to include neurodivergent children will make the holiday more enjoyable for all children.

It’s been a long and exhausting year - patience and empathy for everyone goes a long way.

Sadly, our wee whānau have been hit by Covid 19. I wrote this piece for Awhi Ngā Mātua and published it there last week.

Thanks for letting me republish it here and for supporting me with your paid subscription during this scary and sucky time. I appreciate it more than you could ever know! Arohanui Emily x